Category Archives: shining a light

#MEAwareness: MEcfs facts & my parting thoughts

Well, this is the end of #MillionsMissing2021 and the last of my #MEAwareness posts for this month. (I’d say for this year, but we all know that isn’t likely.) Today, Friday, 5/14, is a day to Connect with Community via … Continue reading

Posted in #MEcfsAwareness, advocacy, chronicillness, community, disability, giving to others, health, illness, learning, making a difference, perseverance, shining a light | Leave a comment

#MEAwareness: Guest Post – My Open Letter to COVID Long-Haulers

dSavannah note: Liz Burlingame, like Elke (whose story I posted on Tuesday), participated in ME/CFS Advocacy Day 2021 on Tuesday, April 20, an event sponsored by Solve ME. Liz, along with many others, urged our elected officials to support funding … Continue reading

Posted in #MEcfsAwareness, advocacy, chronicillness, community, disability, giving to others, health, illness, making a difference, shining a light | Leave a comment

#MEAwareness: My Story for #MillionsMissing

Today, Wednesday, 5/12, is the virtual #MillionsMissing2021 global event at 12pm PST/ 3pm ET, 7pm GMT, 8pm BST! They promise 20+ speakers and videos, and a very exciting #MEAction Study Announcement. Hope you are able to attend! #MEAction has asked … Continue reading

Posted in #dSavannahDefects, #MEcfsAwareness, advocacy, chronicillness, disability, giving to others, hard work, health, illness, learning, making a difference, mental illness, shining a light | 6 Comments

#MEAwareness: Guest Post – My MEcfs

dSavannah note: Elke was asked to share her story for MECFS Advocacy Day 2021 on Tuesday, April 20, urging elected officials to support funding and research of post-viral illnesses like MECFS and long COVID. The event was sponsored by Solve … Continue reading

Posted in #MEcfsAwareness, advocacy, chronicillness, community, disability, giving to others, illness, making a difference, shining a light | Leave a comment

#MEAwareness: You Are Not Alone

This is the fourth year I am participating in #MEAction‘s #MillionsMissing Advocacy for my disease, Myalgic Encephalomyelitis (MEcfs). And, I’m tired, y’all. I’ve barely begun my posts that need to be published starting today, Sunday, May 9 (I started this … Continue reading

Posted in #MEcfsAwareness, advocacy, chronicillness, community, disability, giving to others, health, illness, making a difference, shining a light | 6 Comments

The LOVE YOUR Challenge – Epilogue

If you’re reading this post on my site (as opposed to getting it via email), you might note that I have updated my site header. I’ve needed to do this for a long, long time: as I’ve (probably) stated elsewhere, … Continue reading

Posted in #dSavannahDefects, advocacy, art, chronicillness, community, disability, giving to others, hard work, health, illness, inspiration, making a difference, perseverance, shining a light, the dark places | 8 Comments

The LOVE YOUR 28 Day Challenge

I’m in a couple groups for Chronic Illness Bloggers, and one of the bloggers, Morgan of the blog Is Was Will Be, put out a call to see if any of us would be willing to road-test a revised self-help … Continue reading

Posted in #dSavannahDefects, advocacy, art, chronicillness, community, disability, giving to others, hard work, health, illness, inspiration, love, making a difference, perseverance, photography, shining a light, the dark places | 6 Comments