Category Archives: #MEcfsAwareness

#MEAwareness: MEcfs facts & my parting thoughts

Posted on May 14, 2021 by dSavannah

Well, this is the end of #MillionsMissing2021 and the last of my #MEAwareness posts for this month. (I’d say for this year, but we all know that isn’t likely.) Today, Friday, 5/14, is a day to Connect with Community via … Continue reading →

Posted in #MEcfsAwareness, advocacy, chronicillness, community, disability, giving to others, health, illness, learning, making a difference, perseverance, shining a light | Leave a comment

#MEAwareness: Guest Post – My Open Letter to COVID Long-Haulers

Posted on May 13, 2021 by dSavannah

dSavannah note: Liz Burlingame, like Elke (whose story I posted on Tuesday), participated in ME/CFS Advocacy Day 2021 on Tuesday, April 20, an event sponsored by Solve ME. Liz, along with many others, urged our elected officials to support funding … Continue reading →

Posted in #MEcfsAwareness, advocacy, chronicillness, community, disability, giving to others, health, illness, making a difference, shining a light | Leave a comment

#MEAwareness: My Story for #MillionsMissing

Posted on May 12, 2021 by dSavannah

Today, Wednesday, 5/12, is the virtual #MillionsMissing2021 global event at 12pm PST/ 3pm ET, 7pm GMT, 8pm BST! They promise 20+ speakers and videos, and a very exciting #MEAction Study Announcement. Hope you are able to attend! #MEAction has asked … Continue reading →

Posted in #dSavannahDefects, #MEcfsAwareness, advocacy, chronicillness, disability, giving to others, hard work, health, illness, learning, making a difference, mental illness, shining a light | 6 Comments

#MEAwareness: Guest Post – My MEcfs

Posted on May 11, 2021 by dSavannah

dSavannah note: Elke was asked to share her story for MECFS Advocacy Day 2021 on Tuesday, April 20, urging elected officials to support funding and research of post-viral illnesses like MECFS and long COVID. The event was sponsored by Solve … Continue reading →

Posted in #MEcfsAwareness, advocacy, chronicillness, community, disability, giving to others, illness, making a difference, shining a light | Leave a comment

#MEAwareness: Artists with MEcfs

Posted on May 10, 2021 by dSavannah

According to The #MEAction Network‘s timeline of events, today, Monday, 5/10, is a day to Share Your Art! They are hosting a virtual Artist Salon today from 12pm-1pm (PST) / 3pm-4pm (EST), as a way to celebrate and highlight the … Continue reading →

Posted in #MEcfsAwareness, advocacy, art, artist, chronicillness, community, crafting, drawing, health, illness, inspiration, making a difference, music, painting, passion, photography, talent | 2 Comments

#MEAwareness: You Are Not Alone

Posted on May 9, 2021 by dSavannah

This is the fourth year I am participating in #MEAction‘s #MillionsMissing Advocacy for my disease, Myalgic Encephalomyelitis (MEcfs). And, I’m tired, y’all. I’ve barely begun my posts that need to be published starting today, Sunday, May 9 (I started this … Continue reading →

Posted in #MEcfsAwareness, advocacy, chronicillness, community, disability, giving to others, health, illness, making a difference, shining a light | 6 Comments

we’re all just muddling along

Posted on May 15, 2020 by dSavannah

It’s now May 15th, and I haven’t written or published a blog post since February, despite my goal to write one the 15th of every month, and despite my previous success (mostly) at making that goal. When March rolled around, … Continue reading →

Posted in #MEcfsAwareness, advocacy, chronicillness, community, depression, disability, health, illness, making a difference, mental illness | 13 Comments