Category Archives: learning

#MEAwareness: MEcfs facts & my parting thoughts

Well, this is the end of #MillionsMissing2021 and the last of my #MEAwareness posts for this month. (I’d say for this year, but we all know that isn’t likely.) Today, Friday, 5/14, is a day to Connect with Community via … Continue reading →

Posted in #MEcfsAwareness, advocacy, chronicillness, community, disability, giving to others, health, illness, learning, making a difference, perseverance, shining a light | Leave a comment

#MEAwareness: My Story for #MillionsMissing

Today, Wednesday, 5/12, is the virtual #MillionsMissing2021 global event at 12pm PST/ 3pm ET, 7pm GMT, 8pm BST! They promise 20+ speakers and videos, and a very exciting #MEAction Study Announcement. Hope you are able to attend! #MEAction has asked … Continue reading →

Posted in #dSavannahDefects, #MEcfsAwareness, advocacy, chronicillness, disability, giving to others, hard work, health, illness, learning, making a difference, mental illness, shining a light | 6 Comments

Speaking up – #BlackLivesMatter (and a #GNU)

There is an awful lot going on in the world right now, even more so than when I published last month, which I didn’t think was possible. In addition, this post is very “late” (i.e., not published on my self-imposed … Continue reading →

Posted in advocacy, chronicillness, community, disability, giving to others, hard work, illness, learning, making a difference, opportunity, perseverance, shining a light, the dark places | 6 Comments

Mourning the end of an era, and #NotEnough4ME

Five years ago yesterday was the last day of my last job, the end of my professional life, and the start of my life as a disabled person (although I didn’t know at the time that it was the end, … Continue reading →

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, giving to others, hard work, illness, inspiration, learning, making a difference, passion, perseverance, shining a light, the dark places | 14 Comments

what a pain…

dSavannah note: Hello, dear readers and people who have stumbled across this blog by accident. This is my post for September 2019, which as I promised back in ye olden days of January, is being published on the 15th 16th. … Continue reading →

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, giving to others, hard work, health, illness, insomnia, learning, science | 9 Comments

Just one thing

Once again, I am changing my blog post topic at the last minute (okay, a week before publish date, which as I’ve mentioned, is now “last minute” for me), so you’ll just have to wait longer to read my thoughts … Continue reading →

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, hard work, health, illness, inspiration, learning, making a difference, perseverance, shining a light | 8 Comments

Looking back, looking ahead…

So, y’all, it’s 2019. Not sure how… after all, I still remember when a credit card expiration of the year 2000 was wild. And no one would quite believe me when I used it to pay for something over the … Continue reading →

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, dreams, hard work, health, illness, inspiration, learning, making a difference, perseverance, shining a light, the dark places | 15 Comments