Category Archives: advocacy

Looking back, looking ahead…

So, y’all, it’s 2019. Not sure how… after all, I still remember when a credit card expiration of the year 2000 was wild. And no one would quite believe me when I used it to pay for something over the … Continue reading

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, dreams, hard work, health, illness, inspiration, learning, making a difference, perseverance, shining a light, the dark places | 15 Comments

#MEAwareness: Guest Post on Life with ME

dSavannah note: You may have noticed I haven’t published anything since May 12, #MEAwareness / #MillionsMissing Day. All of that advocacy wore me slap out (and I don’t think I’ve recovered yet). A friend in one of my MEcfs support … Continue reading

Posted in #dSavannahDefects, #MEcfsAwareness, advocacy, chronicillness, community, disability, friends, giving to others, hard work, health, illness, learning, making a difference, the dark places | 2 Comments

#MEAwareness – and here’s what I’m missing

So, I’ve written about my chronic illnesses a lot. I even spent the entire last #AtoZChallenge (2016) writing about it, under the theme “dSavannah Defects” (aka things that are wrong with me), a category I’ve continued to use because, well, … Continue reading

Posted in #dSavannahDefects, #MEcfsAwareness, advocacy, chronicillness, community, depression, disability, giving to others, hard work, illness, insomnia, learning, making a difference, perseverance, shining a light, the dark places | 4 Comments

#MEAwareness: What a Crash looks like

On November 30, 2017, my husband took me to a Continuing Education event, hosted by the CDC and #MEAction, to view the documentary Unrest, an unflinching, real, true, up-close-and-personal look at chronic illness, specifically myalgic encephalomyelitis, commonly (and erroneously) (and … Continue reading

Posted in #dSavannahDefects, #MEcfsAwareness, advocacy, chronicillness, community, disability, giving to others, health, illness, making a difference, sci-fi, shining a light, the dark places | Leave a comment

#MEAwareness: Let’s talk about funding

dSavannah note: If you follow me at all on social media, you’ll see that I am frantically tweeting and posting a BUNCH of articles & whatnot this week for #MEAwareness Month, and for the #MillionsMissing events that will be held … Continue reading

Posted in #dSavannahDefects, #MEcfsAwareness, abuse, advocacy, author, chronicillness, community, disability, giving to others, health, illness, making a difference, shining a light, the dark places | 2 Comments

It’s #MEAwareness Month – and please act!

May is Awareness Month for a lot of illnesses, such as Amyotrophic lateral sclerosis (ALS) / Lou Gehrig’s disease, Lupus, and Mental Health. Last month was Ankylosing Spondylitis (AS) Awareness Month, which Charis Hill wrote about extensively. (And I never … Continue reading

Posted in #dSavannahDefects, #MEcfsAwareness, advocacy, chronicillness, community, disability, family, giving to others, hard work, health, illness, insomnia, learning, making a difference, mental illness, perseverance, shining a light, the dark places | 6 Comments

Let’s talk about disability insurance

This is a hard topic for me to write about, but: it’s important. And it also fits in with my mission to Shine A Light Into the Dark Places, the stigmatized places, the places no one wants to look at … Continue reading

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, friends, giving to others, hard work, health, illness, inspiration, learning, making a difference, perseverance, shining a light, the dark places | Leave a comment