what is unrest?

dSavannah note: I started this post eons ago, but my brain just hasn’t functioned enough to finish it. So, this one may be more disjointed than usual. And I’ve taken off the bits I can’t figure out how to write properly, and will (eventually, maybe) put them in another post. If I wait until I can express myself the way I want, this post will never get published. And this is too important to wait.

A bit ago (part of my illnesses is that time runs together and I have no real concept of it anymore), I wrote about Lady Gaga’s documentary, and included her tweet that said she hoped the film it would raise awareness for fibromyalgia and other painful, invisible illnesses. As I wrote in my post, I don’t think it did.

But now there’s a documentary that is an unflinching, real, true, up-close-and-personal look at chronic illness, specifically myalgic encephalomyelitis, commonly (and erroneously) known as chronic fatigue syndrome (ME/CFS).

Here’s the trailer for Unrest:

One of my online #spoonie friends, Sarah Stanton (who is also a fan of one of my very favorite authors, Terry Pratchett), was able to go to a screening and meet the filmmaker. She wrote a beautiful review.

Her words moved me, and so I asked if I could quote her, and she said yes. Here is a bit of it:

…seeing Unrest felt like a victorious battle. it was a sad film, but it waved its sadness like a battle flag. It said the universe had done all it could but you were still alive. it was one of the realest films I’ve ever seen.

I really wish I could explain how important this film is to me and to others with ME/CFS and other chronic illnesses.

But I can’t. My brain isn’t working today. And it hasn’t been. And sitting here trying to type these words hurts more than I can express.

I’m publishing this blog post now to let my readers know that the film is now available on Netflix, in a number of languages.

If you have ever, ever cared for me before, or anyone else with a chronic illness or disability, please watch this film and learn the reality for us. How our lives have been stolen.

And, please watch the Ted Talk by the filmmaker:

And please share the film. Not just for me, but for the #millionsmissing.

PS. When you watch, be sure to have tissues handy.

More ramblings / other posts you might want to read...


About dSavannah

~ #disabled #spoonie fighting numerous, chronic, painful #InvisibleIllnesses ~ also #wife #feminist #ally #advocate #papyrophiliac #DogCatTurtleWrangler
This entry was posted in #dSavannahDefects, community, giving to others, hard work, health, illness, inspiration, joy, learning, making a difference, perseverance, shining a light, the dark places. Bookmark the permalink.

2 Responses to what is unrest?

  1. Elaine LeDoux says:

    Debbie, as you know I have watched this film in awe of the people like you who continue on despite the horrendous pain and torment with such amazing tenacity. I so agree that everyone should watch this in order to have any understanding whatsoever of a disease that is so inexplicable and beyond understanding. God bless you and all who suffer…may there be a solution found sooner than later

    • dSavannah dSavannah says:

      My dear, thank you as always for being such a supportive friend. Thank you for reading and sharing and bearing witness to our experience. So many people just turn their heads and pretend it doesn’t exist. Thank you for not being one of those people. <3

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