dSavannah note: I started this post eons ago, but my brain just hasn’t functioned enough to finish it. So, this one may be more disjointed than usual. And I’ve taken off the bits I can’t figure out how to write properly, and will (eventually, maybe) put them in another post. If I wait until I can express myself the way I want, this post will never get published. And this is too important to wait.
A bit ago (part of my illnesses is that time runs together and I have no real concept of it anymore), I wrote about Lady Gaga’s documentary, and included her tweet that said she hoped the film it would raise awareness for fibromyalgia and other painful, invisible illnesses. As I wrote in my post, I don’t think it did.
But now there’s a documentary that is an unflinching, real, true, up-close-and-personal look at chronic illness, specifically myalgic encephalomyelitis, commonly (and erroneously) known as chronic fatigue syndrome (ME/CFS).
Here’s the trailer for Unrest:
One of my online #spoonie friends, Sarah Stanton (who is also a fan of one of my very favorite authors, Terry Pratchett), was able to go to a screening and meet the filmmaker. She wrote a beautiful review.
Her words moved me, and so I asked if I could quote her, and she said yes. Here is a bit of it:
…seeing Unrest felt like a victorious battle. it was a sad film, but it waved its sadness like a battle flag. It said the universe had done all it could but you were still alive. it was one of the realest films I’ve ever seen.
I really wish I could explain how important this film is to me and to others with ME/CFS and other chronic illnesses.
But I can’t. My brain isn’t working today. And it hasn’t been. And sitting here trying to type these words hurts more than I can express.
I’m publishing this blog post now to let my readers know that the film is now available on Netflix, in a number of languages.
If you have ever, ever cared for me before, or anyone else with a chronic illness or disability, please watch this film and learn the reality for us. How our lives have been stolen.
And, please watch the Ted Talk by the filmmaker:
And please share the film. Not just for me, but for the #millionsmissing.
PS. When you watch, be sure to have tissues handy.