Category Archives: health

Looking back, looking ahead…

My first entry into the Gratitude Journal, 6/11/2014.

So, y’all, it’s 2019. Not sure how… after all, I still remember when a credit card expiration of the year 2000 was wild. And no one would quite believe me when I used it to pay for something over the phone. Looking back… In 2018, I published 12 blog posts. They were spread out over the year on random dates, except for the four I published for #MEAwareness week (May 6-12). And two of them weren’t even mine, really, they were guest posts. In 2018, I also participated in the greatest fight of my life. In February, almost three years after first filing for disability insurance, I had a hearing in front of a judge. I haven’t written about applying and the hearing before this, … Continue reading

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, dreams, hard work, health, illness, inspiration, learning, making a difference, perseverance, shining a light, the dark places | 8 Comments

#MEAwareness: Guest Poetry Post by Bill Clayton

my disabled parking placard

dSavannah note: I’m in quite a few Myalgic Encephalomyelitis (MEcfs) support groups online, and I ran across this poem by a fellow #pwME (patient with ME), Bill Clayton. I asked if I could post it on my blog, and he said yes. It’s long, but it’s a worthy read about how having a “Blue Badge” helps make our lives easier. (U.K.; in the U.S., it’s officially called a “Disabled Person’s Parking Permit [placard]“) We often hear stories of people being yelled at and humiliated for having and using a Blue Badge. I myself was terrified of that very thing happening, but so far, no one has said anything. Thankfully. Hubs said that if I did get confronted, to offer to give the person any one … Continue reading

Posted in #dSavannahDefects, author, chronicillness, community, disability, giving to others, health, illness, making a difference, perseverance, poetry, shining a light, writershelpingwriters | Leave a comment

Hello? Is this thing on?

Hope Plant 03292018

So, it’s been a minute (or more like 311,040 at the time of this writing, but who’s counting?) since I last published a blog post. In my previous life (before becoming a Sick Person), I could multi-task like nobody’s business. Not anymore. If I write this blog post, it means I cannot do anything else, even if I need to do it. And then, there’s the issue of… getting stuck. The longer I don’t write anything, the harder it gets to write something. Even with words rattling around my head. Even with 29 posts in my drafts folder, and who knows how many ideas in my email. Plus, the feeling that what I write should mean something. The pressure on myself for it to be … Continue reading

Posted in #dSavannahDefects, chronicillness, disability, hard work, health, illness, insomnia, making a difference, perseverance | 6 Comments

#MEAwareness: Guest Post on Life with ME


dSavannah note: You may have noticed I haven’t published anything since May 12, #MEAwareness / #MillionsMissing Day. All of that advocacy wore me slap out (and I don’t think I’ve recovered yet). A friend in one of my MEcfs support groups, Jonathan, took almost two months to write this to share with his family and friends to educate them on his reality. I asked if I could publish it on my blog, and he said yes. What you are reading is exactly as he wrote it (so any typos are his, not mine for once. ha!). Dear friends and family, This is a message from Jonathan. The impetus for this message is that May was ME/CFS awareness month, but I also wanted to update you on what … Continue reading

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, friends, giving to others, hard work, health, illness, learning, making a difference, the dark places | 2 Comments

#MEAwareness: What an MEcfs Crash looks like


On November 30, 2017, my husband took me to a Continuing Education event, hosted by the CDC and #MEAction, to view the documentary Unrest, an unflinching, real, true, up-close-and-personal look at chronic illness, specifically myalgic encephalomyelitis, commonly (and erroneously) (and horribly) known as chronic fatigue syndrome (MEcfs). A disease I suffer daily. The filmmaker, Jennifer Brea, was in attendance (who I was too exhausted to meet), as were members of the Georgia Chapter of MEAction (on Facebook, so you’ll need an account), along with Dr. Elizabeth Unger and Dr. Nancy Klimas (sorry I’m too tired to get links, but they are Very Important People and Advocates for MEcfs). Although I wrote copious notes from the event to write a blog post, I have been unable … Continue reading

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, giving to others, health, illness, making a difference, sci-fi, shining a light, the dark places | Leave a comment

#MEAwareness: Let’s talk about funding

A global day of action for ME patients to share their stories. More on their site.

dSavannah note: If you follow me at all on social media, you’ll see that I am frantically tweeting and posting a BUNCH of articles & whatnot this week for #MEAwareness Month, and for the #MillionsMissing events that will be held on this Saturday, May 12. Because, as I said in my last blog post (and my first post in two months), it’s important. Not just for me, but for everyone else who suffers from this horrible disease. (Please also note, I have done a bunch of advocacy already today, and I am very very tired. My eyes are burning. My back and wrists and neck and arms are throbbing, and the rest of me is not in much better shape, pain-wise. My brain is sputtering … Continue reading

Posted in #dSavannahDefects, abuse, advocacy, author, chronicillness, community, disability, giving to others, health, illness, making a difference, shining a light, the dark places | 2 Comments

It’s #MEcfs Awareness Month – and please act!


May is Awareness Month for a lot of illnesses, such as Amyotrophic lateral sclerosis (ALS) / Lou Gehrig’s disease, Lupus, and Mental Health. Last month was Ankylosing Spondylitis (AS) Awareness Month, which Charis Hill wrote about extensively. (And I never managed to. Sorry.) But this month is awareness for my primary illness, Myalgic Encephalomyelitis (ME), also known by the terrible moniker chronic fatigue syndrome. And May 12th specifically is International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) (per the May 12th International Awareness Day website), and International ME/CFS and Fibromyalgia Awareness Day. (dSavannah note: my brain does NOT want to work today {on May 5, which is when I originally started this post}. Writing this is like trying to sludge through the grimiest, stickiest … Continue reading

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, family, giving to others, hard work, health, illness, insomnia, learning, making a difference, mental illness, perseverance, shining a light, the dark places | 6 Comments