Category Archives: hard work

Let’s talk about disability insurance

disabilities_look-like

This is a hard topic for me to write about, but: it’s important. And it also fits in with my mission to Shine A Light Into the Dark Places, the stigmatized places, the places no one wants to look at or talk about. And one of those places is disability, and specifically, disability insurance. I see sooo soo many people on twitter and other social media platforms crowdfunding things like – fish oil for their kid, or an audible membership, or a wheelchair, or funds toward a new apartment. Look under the hashtag #DisabilityWishlists, and get ready to cry at all the things people need. And if you have any money to spare, which trust me, unless you too are disabled, you actually do, pick … Continue reading

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, friends, giving to others, hard work, health, illness, inspiration, learning, making a difference, perseverance, shining a light, the dark places | Leave a comment

Important calls to ME patients

A global day of action for ME patients to share their stories. More on their site.

dSavannah note: Don’t know what’s come over me to be posting again in the same week, but… again, this is important. Please spread it far and wide! Numerous, numerous! Myalgic Encephalomyelitis (ME) patients have become far worse – some now 100% bedbound! – after being forced to do treatments based on bad science, after being told the disease was in their heads (like Jen Brea), that they made it up, that they must not want to get better, and other terrible things. Dr. Sarah Myhill, a UK physician, medical writer and researcher, is working on a complaint to the UK GMC (General Medical Council) about the amazing amount of harm one particular study, PACE, has done to ME patients across the globe. PACE has now been discredited, … Continue reading

Posted in advocacy, chronicillness, giving to others, hard work, health, illness, making a difference, perseverance, shining a light, the dark places | Leave a comment

what is unrest?

dSavannah note: I started this post eons ago, but my brain just hasn’t functioned enough to finish it. So, this one may be more disjointed than usual. And I’ve taken off the bits I can’t figure out how to write properly, and will (eventually, maybe) put them in another post. If I wait until I can express myself the way I want, this post will never get published. And this is too important to wait. A bit ago (part of my illnesses is that time runs together and I have no real concept of it anymore), I wrote about Lady Gaga’s documentary, and included her tweet that said she hoped the film it would raise awareness for fibromyalgia and other painful, invisible illnesses. As I … Continue reading

Posted in #dSavannahDefects, community, giving to others, hard work, health, illness, inspiration, joy, learning, making a difference, perseverance, shining a light, the dark places | 2 Comments

The forgotten heroes…

dadinuniform

dSavannah note: So, the last time I had a ‘spate’ of blogging was in April (APRIL!), due to my chronic illnesses and brain fog and depression, oh my. But I actually wrote {runs to check} erm, 19 (really?!? really!) drafts, so I’m gonna try to semi-polish them up (telling my perfectionism to take a hike) and go ahead and publish them. In no particular order. So here’s the first. Likely errors included. Mike Rowe (of Discovery Channel’s “Dirty Jobs” fame) has a new series on Facebook (the platform is apparently getting into developing content now; the next step for them, I guess) called “Returning the Favor“. The premise is similar to the one for “Dirty Jobs” – except instead of finding people doing the truly … Continue reading

Posted in community, depression, dreams, family, giving to others, hard work, hell, history, inspiration, learning, making a difference, opportunity, passion, perseverance, shining a light, the dark places | Leave a comment

My thoughts on Lady Gaga’s documentary & chronic illness

Lady Gaga at a doctor

dSavannah note: Yes, this is my first post in a long time. Yes, there are probably errors. Everything sounds great in my head, and then I go to write it out, and my brain drops out and my eyes cross and my back spasms and the words turn to mush. (A fun benefit of having a chronic illness.) I’ll admit: I’ve never really been a fan of Lady Gaga. I’ve never actively disliked her either, but I never really cared for her or her crazy persona with the wild outfits and wigs, or her pop music (I’m more a blues, alternative, rock – and occasionally rap – girl). But the chronic illness community has been talking about Lady Gaga’s documentary, now streaming on Netflix, and … Continue reading

Posted in artist, depression, dreams, fear, feminism, hard work, health, illness, mental illness, music | 8 Comments

So this is embarrassing…

Since best practices say you should have photos for your blog posts, and no one wants to see photos of me crying, I

Obviously I haven’t written anything on my blog for a long, long time. (Except in my head… But since brainwave to blog technology doesn’t exist yet, I guess it doesn’t count…) For reasons, mostly my health. And pain. And brain fog. But, mainly, last August I got a temporary, part-time, work-from-home job. The pay was terrible, but it was something, which was better than what I’d been making before, which was zero. And it was totally something I could do, having done it before, and also generally liking the basic concept of the job. (And yes, I’m being vague about it.) Unfortunately, every ounce of energy I had, and every spoon I possessed (and then some), went toward me doing this job. (Even a healthy … Continue reading

Posted in #dSavannahDefects, depression, hard work, health, hell, illness, memory, mental illness | 7 Comments

#dSavannah #HolidayGiftGuide2016

grumpy_season

Well, y’all may have noticed I haven’t posted in a while.  I even got kicked off the Insecure Writers Support Group blog hop list (as I should be). Let’s just say I’ve been busy. And I haven’t had the brain power to blog. I still don’t. But, the holidays are upon us, and although I can’t financially support all my friends who are creators, artists & writers, I can certainly tell you about them, in my Holiday Gift Guide, 2016. Enjoy. And #SupportCreatorsWritersAndArtists. And give some really awesome gifts in the process. 1 #Artist Diego Jourdan Pereira Adult #ColoringBooks! (incl. #GrumpyCat) amazon 2 #BrunswickArtist #Painter Gene Threats his site 3 #YAWriter Mike Grosso #YA #Debut #Book “I Am Drums” B&N Bonus: email him with a … Continue reading

Posted in art, artist, author, books, fiction, giving to others, hard work, joy, making a difference, writershelpingwriters, writing | 4 Comments