Category Archives: advocacy

Let’s talk about disability insurance

disabilities_look-like

This is a hard topic for me to write about, but: it’s important. And it also fits in with my mission to Shine A Light Into the Dark Places, the stigmatized places, the places no one wants to look at or talk about. And one of those places is disability, and specifically, disability insurance. I see sooo soo many people on twitter and other social media platforms crowdfunding things like – fish oil for their kid, or an audible membership, or a wheelchair, or funds toward a new apartment. Look under the hashtag #DisabilityWishlists, and get ready to cry at all the things people need. And if you have any money to spare, which trust me, unless you too are disabled, you actually do, pick … Continue reading

Posted in #dSavannahDefects, advocacy, chronicillness, community, disability, friends, giving to others, hard work, health, illness, inspiration, learning, making a difference, perseverance, shining a light, the dark places | Leave a comment

imagining pain away (or, it don’t work that way)

Pain is all about waiting. Waiting for it to stop. Waiting for medication to work. Waiting to see a doctor. Waiting for others to believe you. Waiting for a future cure.

dSavannah note: I started this post – well, I can’t remember when – and I’ve been working on it ever since. Even if it’s not quite “ready”, and I can’t think of a better headline, I’m just gonna publish it… I’m sick of looking at it. And I’d like to cross at least one thing off my massive to-do list. (Which never ever ends. Being a Sick Person is harder work than you’d imagine.) I had a doctor tell me that he was able to have a dental procedure with no novocaine because he imagined he was on a beach with storm clouds out on the horizon. And that he concentrated on the clouds. And thus he had no pain. He didn’t say it explicitly, … Continue reading

Posted in #dSavannahDefects, advocacy, chronicillness, depression, giving to others, health, illness, insomnia, making a difference, science, shining a light, the dark places | 7 Comments

Important calls to ME patients

A global day of action for ME patients to share their stories. More on their site.

dSavannah note: Don’t know what’s come over me to be posting again in the same week, but… again, this is important. Please spread it far and wide! Numerous, numerous!¬†Myalgic Encephalomyelitis (ME) patients have become far worse – some now 100% bedbound! – after being forced to do treatments based on bad science, after being told the disease was in their heads (like Jen Brea), that they made it up, that they must not want to get better, and other terrible things. Dr. Sarah Myhill, a UK physician, medical writer and researcher, is working on a complaint to the UK GMC (General Medical Council) about the amazing amount of harm one particular study,¬†PACE, has done to ME patients across the globe. PACE has now been discredited, … Continue reading

Posted in advocacy, chronicillness, giving to others, hard work, health, illness, making a difference, perseverance, shining a light, the dark places | Leave a comment