Category Archives: advocacy

imagining pain away (or, it don’t work that way)

Pain is all about waiting. Waiting for it to stop. Waiting for medication to work. Waiting to see a doctor. Waiting for others to believe you. Waiting for a future cure.

dSavannah note: I started this post – well, I can’t remember when – and I’ve been working on it ever since. Even if it’s not quite “ready”, and I can’t think of a better headline, I’m just gonna publish it… I’m sick of looking at it. And I’d like to cross at least one thing off my massive to-do list. (Which never ever ends. Being a Sick Person is harder work than you’d imagine.) I had a doctor tell me that he was able to have a dental procedure with no novocaine because he imagined he was on a beach with storm clouds out on the horizon. And that he concentrated on the clouds. And thus he had no pain. He didn’t say it explicitly, … Continue reading

Posted in #dSavannahDefects, advocacy, chronicillness, depression, giving to others, health, illness, insomnia, making a difference, science, shining a light, the dark places | 7 Comments

Important calls to ME patients

A global day of action for ME patients to share their stories. More on their site.

dSavannah note: Don’t know what’s come over me to be posting again in the same week, but… again, this is important. Please spread it far and wide! Numerous, numerous! Myalgic Encephalomyelitis (ME) patients have become far worse – some now 100% bedbound! – after being forced to do treatments based on bad science, after being told the disease was in their heads (like Jen Brea), that they made it up, that they must not want to get better, and other terrible things. Dr. Sarah Myhill, a UK physician, medical writer and researcher, is working on a complaint to the UK GMC (General Medical Council) about the amazing amount of harm one particular study, PACE, has done to ME patients across the globe. PACE has now been discredited, … Continue reading

Posted in advocacy, chronicillness, giving to others, hard work, health, illness, making a difference, perseverance, shining a light, the dark places | Leave a comment